Somewhere, I have a running tally I never asked to keep. The number of times I have repeated my own medical history this year. The number of portal messages I’ve sent that never got a real answer. The number of prior authorizations, pharmacy call-backs, and...
Summer has a particular way of making the gap visible. Not just the fatigue gap, though that’s real — the heat alone can turn a Tuesday into a recovery day. But the gap between your life and the one happening around you. The cookouts you show up to for an hour...
It’s June, and everyone around you seems to be gearing up for something. Plans, trips, parties, the general uptick in energy that summer brings for a lot of people. And you’re sitting with the quiet awareness that you don’t have what it’s going...
Sometime around the third bad week in a row, the question changes. It’s not “why do I feel this way” anymore. It’s “is this just how it is now.” That shift is worth paying attention to, not because it means you’ve given up,...
Have you ever had a day where nothing on your to-do list looked that hard, and you still couldn’t get through it? That’s the one I want to talk about. Not the flare day, not the crash after overdoing it. The day that just feels heavier than it should, and...
Before you’ve made coffee, before your day has technically started — you’ve already been working. You’ve scanned your body for overnight changes. You’ve run a quick calculation about what yesterday cost you and what that means for today....
a queer chronic illness blogger and digital resource creator. I make low-pressure tools and compassionate content for chronically ill and disabled folks navigating life with pain and limited energy.
When I’m not creating for The Thriving Spoonie, I’m a spouse to the best partner a spoonie could ask for, and a pet parent to an adorable & anxious rescue pup. You’ll usually find me crocheting, curled up with a library book, or playing cozy PC games—with coffee in hand, always.
