Somewhere, I have a running tally I never asked to keep. The number of times I have repeated my own medical history this year. The number of portal messages I’ve sent that never got a real answer. The number of prior authorizations, pharmacy call-backs, and...
You walk in already running on the last quarter of your battery. Then you spend the appointment doing the actual medical part — describing symptoms, answering questions, remembering your history — while also doing a second, invisible job: staying calm enough to be...
You described your symptoms as clearly as you could. You tried to stay calm so they wouldn’t dismiss you as anxious. You brought a list. You answered every question. And somewhere in that appointment, something shifted — and you left feeling like the problem was...
This post was originally published in September 2024 and has been updated with new content and a fresh perspective. Managing a chronic illness is not something you figure out once and then know how to do. The conditions change. Your body changes. The strategies that...
“You’re probably just tired.” It’s the sentence you reach for every time your body tries to tell you something. You’re not in a flare yet. Nothing is technically wrong. But something has shifted. A heaviness you can’t locate, a...
a queer chronic illness blogger and digital resource creator. I make low-pressure tools and compassionate content for chronically ill and disabled folks navigating life with pain and limited energy.
When I’m not creating for The Thriving Spoonie, I’m a spouse to the best partner a spoonie could ask for, and a pet parent to an adorable & anxious rescue pup. You’ll usually find me crocheting, curled up with a library book, or playing cozy PC games—with coffee in hand, always.
