The financial reality of chronic illness is that your costs go up while your earning capacity goes down, usually at the same time, and usually without anyone naming both halves of that sentence. Medical bills are the part people can see. The rest is quieter: a work...
Updated September 2026. I first wrote this in April 2024 and have rewritten most of it since. When someone asks how you’ve been, how much of your answer is edited? I don’t mean lying. I mean the quick pass most of us run before we speak. This version works...
Letting go of old expectations after a chronic illness diagnosis isn’t giving up. It’s the shift that lets you stop measuring your days against a version of yourself that no longer exists, so you can build a life around the one you actually have. That...
Finding your identity outside of chronic illness starts with separating who you are from what your body can currently produce, since most of the identity people build before diagnosis is quietly tied to output, and chronic illness makes that tie impossible to sustain....
Grieving the life you thought you’d have is a real and specific kind of loss, not a sign you’re failing to cope with chronic illness. It means mourning a future self, a set of plans, and an identity you were building before diagnosis changed the terms....
a queer chronic illness blogger and digital resource creator. I make low-pressure tools and compassionate content for chronically ill and disabled folks navigating life with pain and limited energy.
When I’m not creating for The Thriving Spoonie, I’m a spouse to the best partner a spoonie could ask for, and a pet parent to an adorable & anxious rescue pup. You’ll usually find me crocheting, curled up with a library book, or playing cozy PC games—with coffee in hand, always.
