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This post was originally published in August 2022. It has been updated to reflect new insights, additional tips, and an improved format to better support those navigating life with chronic illness.
Have you felt like your purpose slipped away?
If you’re struggling to find purpose and self-worth after a chronic illness diagnosis, let me start by saying you’re not alone. It’s easy to feel like your identity and goals have been lost in the shuffle of medical appointments, new symptoms, and adapting to a different way of living.
Before chronic illness, many of us tied our value to how much we could accomplish. Productivity became a badge of honor. But when our health changes, and productivity isn’t sustainable, it can feel like the ground beneath us has disappeared.
The truth is, chronic illness demands a shift—not just in what we do, but in how we see ourselves. Finding a new sense of purpose doesn’t mean settling for less; it means creating a life that truly aligns with our unique needs and values.
In this post, we’ll explore how chronic illness can challenge our sense of worth and purpose—and, more importantly, how we can reclaim them in ways that are sustainable and deeply meaningful.
Disclaimer: While I offer tips for maintaining wellness while dealing with a chronic illness, I’m not a licensed medical physician, psychotherapist, or psychologist, and I’m not offering medical or psychiatric advice.
For my full disclaimer policy, go here.
How Society’s Standards Warp Our Self-Worth
Let’s face it: society has a bad habit of valuing people based on their output. When chronic illness forces us to step back—whether that’s leaving a job, scaling down responsibilities, or simply resting more—it can feel like we’ve lost our place in the world.
But here’s the thing: your worth is not tied to your productivity.
Your resilience, creativity, and the love you bring to your relationships are just a few examples of your inherent value. Small acts, like celebrating a good day or supporting a loved one, carry immense weight.
Breaking free from societal pressures starts with acknowledging this truth: you are enough, exactly as you are.
Looking for ways to communicate this to others? Check out my post on true support vs. fake allyship, which offers tools to advocate for yourself while staying rooted in self-worth.
Shifting Perspectives: The Power of Self-Compassion
Have you ever heard the saying, “If you change the way you look at things, the things you look at change”? Chronic illness asks us to lean into this wisdom more than most.
Instead of focusing on what you can no longer do, try shifting your attention to the opportunities in your present circumstances. This doesn’t mean toxic positivity—it’s about embracing the full range of your reality and letting go of the comparison trap.
For example:
- Can’t run the PTA bake sale anymore? Maybe you’ve become the friend who offers a listening ear or a safe space for others to share their struggles.
- Struggling with physical tasks? Perhaps you’ve honed emotional resilience or developed a new creative outlet that brings joy.
Self-compassion isn’t a luxury; it’s a necessity. Treating yourself with kindness allows you to focus on what truly matters and opens the door to rediscovering purpose in unexpected places.
Why Purpose Matters More Than Ever
A sense of purpose is like a North Star on this winding chronic illness journey. It offers direction, even when the path ahead feels foggy.
The beautiful thing about purpose is its adaptability. What motivated you pre-diagnosis might not resonate anymore, and that’s okay. Purpose evolves as we do.
Consider this:
- What brings you a sense of peace or fulfillment, even in small moments?
- Is there something you enjoy that helps you feel connected to yourself or others?
These questions can be a starting point for redefining your purpose in a way that fits your current reality.
Four Steps to Rediscover Your Purpose
When Chronically Ill
- Start Small
Purpose doesn’t have to be earth-shattering. Begin with the little things that bring you joy—a cozy morning ritual, the sound of birds chirping, or the satisfaction of completing a task, no matter how small.
Take time to reflect on these moments. They might seem insignificant, but they’re the seeds of something bigger. Purpose isn’t about grandeur; it’s about connection.
- Recognize the Impact You Already Have
It’s easy to overlook the ways we positively affect others. Chronic illness can make us feel isolated or less capable, but even small acts—like a kind word, a shared story, or taking care of a pet—have ripple effects.
Think about your everyday interactions. Do you lift up a friend with your honesty? Provide comfort to loved ones with your empathy? These moments matter. They are proof that your life holds meaning.
- Find Community
One of the best ways to rediscover purpose is by connecting with others who understand what you’re going through. Online spaces like The Mighty or Spoonie Sisterhood provide opportunities to share experiences, offer support, and even learn from others who’ve walked a similar path.
Feeling less alone can spark new ideas about what purpose looks like for you. You might even find yourself helping someone else find their way, which can be deeply fulfilling.
- Look for Emotional Patterns
When you reflect on moments of joy or connection, do you notice a recurring emotion? Maybe it’s gratitude, hope, or the sense of being understood.
These emotions can serve as guideposts. If kindness lights you up, perhaps your purpose involves spreading more of it—to yourself and others. Lean into these feelings to clarify your next steps.
Embracing Your Journey
Living with chronic illness reshapes many aspects of life, but it doesn’t erase your worth or your ability to live a purposeful life.
Your value isn’t tied to what you produce or achieve—it’s rooted in who you are and the unique ways you navigate your journey. By practicing self-compassion, shifting your perspective, and taking small, meaningful steps, you can rediscover your purpose in ways that align with your current reality.
Purpose isn’t a destination; it’s a journey. Take it one step at a time, and trust that you’re exactly where you need to be.
Need a boost as you rediscover your purpose? Download my free resource, 10 Empowering Affirmations for Those With Chronic Illness, to remind yourself of your worth and resilience every day. Fill out the form below to snag your FREE copy!
