This post was originally published several years ago and has been fully updated to reflect my current lived experience and perspective. When I was diagnosed with Idiopathic Intracranial Hypertension in 2018, I walked out of the doctor’s office with a prescription in...
If you’ve ever thought, I’m just bad at boundaries, you’re not alone. It sounds self-aware. Responsible, even. But underneath that sentence is usually something heavier. A quiet belief that if you were stronger, clearer, more confident, or less emotional, you wouldn’t...
One of the hardest parts of living with chronic illness is how much effort happens quietly. You can spend an entire day managing symptoms, anticipating limitations, and navigating other people’s expectations, and still feel like you have nothing tangible to show for...
There was a long stretch of time when my default response to almost everything was yes. Yes, I can handle that. Yes, I’ll figure it out. Yes, I’ll rest later. Not because I actually had the capacity, but because saying no felt heavier. Saying no felt like...
This post was originally published earlier in my chronic illness journey and has been updated to reflect my current perspective, language, and approach to burnout, pacing, and long-term adaptability. For many people living with chronic illness, burnout doesn’t arrive...
Have you ever noticed how often your plans hinge on the idea that you’ll “catch up” later? Later when the flare settles. Later when your energy evens out. Later when life feels a little less demanding. The circumstances change, but the structure stays the same. You...
Self-compassion is often framed as a skill people with chronic illness need to practice more consistently. If it feels hard, the assumption is usually that something needs to be strengthened, reframed, or worked on internally. But for many of us, the issue isn’t a...
The holidays end quietly. No dramatic finish. No clear marker that says this is where you rest now. Just a return to regular days that somehow feel heavier than before. If you live with chronic illness, that shift can land hard. One day you’re holding things together,...
The holidays have a way of knocking even the most carefully built routines off their feet. Late nights. Irregular meals. Extra noise, travel, expectations, or emotional weight. Even if you enjoy parts of the season, it often comes at a cost when you live with chronic...
January has a very specific energy. It’s loud, urgent, and relentless. Everywhere you look, there’s pressure to reset, refocus, and finally become the version of yourself you were supposed to be last year. Even when you consciously reject that messaging, it has a way...
a queer chronic illness blogger and digital resource creator. I make low-pressure tools and compassionate content for chronically ill and disabled folks navigating life with pain and limited energy.
When I’m not creating for The Thriving Spoonie, I’m a spouse to the best partner a spoonie could ask for, and a pet parent to an adorable & anxious rescue pup. You’ll usually find me crocheting, curled up with a library book, or playing cozy PC games—with coffee in hand, always.
